The ordeal of little Konstantinos in the state of irresponsibility

The ordeal of little Konstantinos in the state of irresponsibility

Konstantinos-Efraim, a 10-month-old boy in Cyprus, is fighting for his life due to a rare condition called spinal muscular atrophy type 1. Despite his urgent need for a home nurse, the government and authorities have been unresponsive and ineffective for four months. The boy’s father publicly shared their ordeal, highlighting the lack of action and responsibility from the government. The family faces financial struggles and challenges in accessing specialized nursing care. The government’s failure to implement early detection tests for such conditions is also criticized.

Parents fight for SMA baby denied newborn screening and home care

Parents fight for SMA baby denied newborn screening and home care

The lack of newborn screening for Spinal Muscular Atrophy in Cyprus has resulted in Konstantinos Efraim’s irreversible condition, according to his father Pantelis Costa. Despite eventually receiving treatment, bureaucratic hurdles and delays in care have put Konstantinos at risk, with the family facing financial hardship and relying on friends and relatives for support. The Costas have been pleading for home care and nursing assistance, but have faced alleged mockery from officials. Costa plans to take legal action against the state for the absence of newborn screening and inadequate home care services.